{"id":3143,"date":"2026-07-13T22:05:16","date_gmt":"2026-07-13T22:05:16","guid":{"rendered":"https:\/\/gundem59.com.tr\/?p=3143"},"modified":"2026-07-13T22:05:17","modified_gmt":"2026-07-13T22:05:17","slug":"dmd-hastasi-cinarin-en-buyuk-hayali-galatasaray-macina-gitmek","status":"publish","type":"post","link":"https:\/\/gundem59.com.tr\/?p=3143","title":{"rendered":"DMD Hastas\u0131 \u00c7\u0131nar’\u0131n En B\u00fcy\u00fck Hayali: Galatasaray Ma\u00e7\u0131na Gitmek"},"content":{"rendered":"\n

Tekirda\u011f’\u0131n Ergene il\u00e7esinde ya\u015fayan 9 ya\u015f\u0131ndaki Duchenne Musk\u00fcler Distrofi (DMD) hastas\u0131 \u00c7\u0131nar Ulusoy, iyile\u015ferek arkada\u015flar\u0131 gibi ko\u015fup oynamak ve Galatasaray ma\u00e7\u0131n\u0131 trib\u00fcnden izlemek istedi\u011fini s\u00f6yledi. Tedavisi i\u00e7in ba\u015flat\u0131lan kampanya ise hen\u00fcz y\u00fczde 8 seviyesine ula\u015ft\u0131.<\/strong><\/p>\n\n\n\n

Tekirda\u011f’\u0131n Ergene il\u00e7esine ba\u011fl\u0131 Velime\u015fe Mahallesi’nde ya\u015fayan Buse ve Cihan Ulusoy \u00e7iftinin o\u011fullar\u0131 \u00c7\u0131nar Ulusoy’a, hen\u00fcz anne karn\u0131ndayken Duchenne Musk\u00fcler Distrofi (DMD) te\u015fhisi konuldu. Kaslar\u0131n zamanla g\u00fc\u00e7 kaybetmesine neden olan hastal\u0131kla y\u0131llard\u0131r m\u00fccadele eden \u00c7\u0131nar, \u015fimdi hayata tutunabilmek i\u00e7in yard\u0131m bekliyor.<\/p>\n\n\n\n

Aile, uzun y\u0131llard\u0131r fizik tedavi ve ila\u00e7larla \u00e7ocuklar\u0131n\u0131n ya\u015fam kalitesini art\u0131rmaya \u00e7al\u0131\u015f\u0131rken, g\u00fcn\u00fcm\u00fczde uygulanan gen tedavisinden yararlanabilmek amac\u0131yla Tekirda\u011f Valili\u011fi onay\u0131yla yard\u0131m kampanyas\u0131 ba\u015flatt\u0131. Ancak yakla\u015f\u0131k 2 milyon 659 bin dolar<\/strong> tutar\u0131ndaki tedavi masraf\u0131 i\u00e7in ba\u015flat\u0131lan kampanyada \u015fu ana kadar hedefin yaln\u0131zca y\u00fczde 8’ine ula\u015f\u0131labildi.<\/p>\n\n\n\n

Anne: “\u00c7\u0131nar’\u0131n Elini B\u0131rakmay\u0131n”<\/h3>\n\n\n\n

Anne Buse Ulusoy, o\u011flunun da di\u011fer \u00e7ocuklar gibi ko\u015fup oynayabilmesini istediklerini belirterek hay\u0131rseverlere destek \u00e7a\u011fr\u0131s\u0131nda bulundu.<\/p>\n\n\n\n

Ulusoy, “\u00c7\u0131nar, DMD kas hastal\u0131\u011f\u0131 ile m\u00fccadele ediyor. Tan\u0131s\u0131n\u0131 anne karn\u0131ndayken ald\u0131k. O g\u00fcn aile olarak b\u00fcy\u00fck bir \u00fcz\u00fcnt\u00fc ya\u015fad\u0131k. \u015eu an uygulanabilen gen tedavisi var ancak maliyeti bizim kar\u015f\u0131layabilece\u011fimizin \u00e7ok \u00fczerinde. Bu nedenle valilik onayl\u0131 yard\u0131m kampanyas\u0131 ba\u015flatt\u0131k. \u00c7\u0131nar’\u0131n ya\u015fayabilmesi, arkada\u015flar\u0131 gibi ko\u015fup oynayabilmesi i\u00e7in destek bekliyoruz. O \u00e7ok umutlu ve hayat dolu bir \u00e7ocuk. L\u00fctfen onun elini b\u0131rakmay\u0131n” dedi.<\/p>\n\n\n\n

Baba: “O\u011flumun Ko\u015fmas\u0131n\u0131 \u0130stiyorum”<\/h3>\n\n\n\n

\u00d6zel bir firmada \u015fof\u00f6r ve g\u00fcvenlik g\u00f6revlisi olarak \u00e7al\u0131\u015fan baba Cihan Ulusoy da o\u011flunun hastal\u0131\u011f\u0131 nedeniyle i\u015f hayat\u0131nda zorluklar ya\u015fad\u0131\u011f\u0131n\u0131 belirterek, “Ben de herkes gibi o\u011flumun ko\u015fmas\u0131n\u0131, oyun oynamas\u0131n\u0131 istiyorum. Maddi ve manevi destek bekliyoruz” ifadelerini kulland\u0131.<\/p>\n\n\n\n

“Ya\u015famak \u0130stiyorum”<\/h3>\n\n\n\n

Velime\u015fe \u015eehit Piyade Onba\u015f\u0131 Arman Galata \u0130lkokulu’nda e\u011fitim g\u00f6ren \u00c7\u0131nar Ulusoy ise en b\u00fcy\u00fck hayalini \u015fu s\u00f6zlerle anlatt\u0131:<\/p>\n\n\n\n

\n

“Futbolu \u00e7ok seviyorum. En b\u00fcy\u00fck hayalim iyile\u015fip Galatasaray ma\u00e7\u0131na gitmek. Bana destek olun, ya\u015famak istiyorum.”<\/p>\n<\/blockquote>\n\n\n\n

\u00c7\u0131nar’\u0131n ya\u015fam m\u00fccadelesi, ailesinin ve sevenlerinin deste\u011fiyle s\u00fcrerken, kampanyan\u0131n hedefine ula\u015fabilmesi i\u00e7in hay\u0131rseverlerin katk\u0131s\u0131 bekleniyor.<\/p>\n\n\n\n

Tekirda\u011f, Ergene, Velime\u015fe, \u00c7\u0131nar Ulusoy, DMD, Duchenne Musk\u00fcler Distrofi, Yard\u0131m Kampanyas\u0131, Sa\u011fl\u0131k, \u00c7ocuk, Galatasaray, Ya\u015fam, G\u00fcncel, G\u00fcndem59<\/p>\n\n\n\n

\n\n\n\n

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#\u00c7\u0131narUlusoy #DMD #Ergene #Velime\u015fe #Tekirda\u011f #Galatasaray #Yard\u0131mKampanyas\u0131 #Sa\u011fl\u0131k #\u00c7ocuk #Ya\u015fam #G\u00fcndem59 #T\u00fcrkiyemHaber #G\u00fcndem44 #G\u00fcndem34Haber #Saray59 #T\u00fcrkiyemHaberTV #T\u00fcrkiyemRadyo<\/p>\n","protected":false},"excerpt":{"rendered":"

Tekirda\u011f’\u0131n Ergene il\u00e7esinde ya\u015fayan 9 ya\u015f\u0131ndaki Duchenne Musk\u00fcler Distrofi (DMD) hastas\u0131 \u00c7\u0131nar Ulusoy, iyile\u015ferek arkada\u015flar\u0131…<\/p>\n","protected":false},"author":1,"featured_media":3144,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[56],"tags":[],"ppma_author":[57],"class_list":["post-3143","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-guncel"],"authors":[{"term_id":57,"user_id":1,"is_guest":0,"slug":"admin","display_name":"Alp Aslan","avatar_url":"https:\/\/secure.gravatar.com\/avatar\/07c18c5ad3350b025db8f3328450e071acb435c703e565899c880c63362f137a?s=96&d=mm&r=g","author_category":"1","first_name":"Alp Aslan","last_name":"ER\u0130N","user_url":"http:\/\/www.gundem59.com.tr","job_title":"","description":""}],"_links":{"self":[{"href":"https:\/\/gundem59.com.tr\/index.php?rest_route=\/wp\/v2\/posts\/3143","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/gundem59.com.tr\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/gundem59.com.tr\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/gundem59.com.tr\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/gundem59.com.tr\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=3143"}],"version-history":[{"count":1,"href":"https:\/\/gundem59.com.tr\/index.php?rest_route=\/wp\/v2\/posts\/3143\/revisions"}],"predecessor-version":[{"id":3145,"href":"https:\/\/gundem59.com.tr\/index.php?rest_route=\/wp\/v2\/posts\/3143\/revisions\/3145"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/gundem59.com.tr\/index.php?rest_route=\/wp\/v2\/media\/3144"}],"wp:attachment":[{"href":"https:\/\/gundem59.com.tr\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=3143"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/gundem59.com.tr\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=3143"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/gundem59.com.tr\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=3143"},{"taxonomy":"author","embeddable":true,"href":"https:\/\/gundem59.com.tr\/index.php?rest_route=%2Fwp%2Fv2%2Fppma_author&post=3143"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}